Friday, June 23, 2017
I have not been as active as I should have been. After seeing a documentary about Vietnam on the National Geographic Channel on Memorial Day, I suddenly became ashamed that wasn't more of an activist against that stupid. True, I was in Junior High and High School during most of the Vietnam War, but I was more focused on keeping up my A- average and being a good girl to get my parents' approval, than standing up for what was right and just. As it turned out, I could never do enough to get my parents' approval no matter what I did [but that's a matter for the therapist's couch]. As for working on doing what makes me feel good and not seeking the approval of others? [sigh] What can I say? I am forever a work in progress.
My life, and the lives of so many others depend on proper medical care and many of us depend on Medicare and Medicaid. The new Health Care bill was finally partially unveiled yesterday, and no wonder it has been shrouded in secrecy: it sucks for the middle class and its drastic cuts in service will supposedly fill the deficit caused by tax cuts for the rich. Yes, you guessed it: Once again, Trump and his cohorts twist around things in order to screw the poor and middle-class, and benefit the 1%
My message to all the coalminers and working-class people out there who bought Trump's lies about helping the working man -- I certainly hope you're all happy when you suffer from mesothelioma, black-lung disease, and whatever other occupational diseases befall the workers who dig, drill, build, chop, saw, assemble and meld -- and find that your medical insurance [if you even have it] doesn't pay squat. See if Trump gave a damn that you might go broke, lose your home, starve and die a lot earlier than you should have. See if you're still happy about that vote for Trump in November, 2016.
Democrats hate the bill and so do a lot of Republicans. That fact doesn't console me, and it shouldn't console you either. Read this Op-Ed column by David Leonhardt in the New York Times today and see if it doesn't make you want to fight, And, as I have said many times before, you are sadly misled if you think Medicare and Medicaid are only programs for the poor. You are also sadly naive if you think you will never need catastrophic coverage -- one bout of cancer or heart disease has wiped out many a family financially. Be scared; be very scared. But don't stop there -- write letters to your senators and representatives in Congress and let them know that if they support this bill, you will not vote for them in the next election!
As for myself, I will be looking for ways that I can be more of an activist within the limitations of the health I have been lucky to have thus far.
Sunday, June 11, 2017
Not only Americans with ALS, but anybody with a neuromuscular disease -- in fact, anyone with a chronic disease -- should do anything possible to block the Trump Budget Plan. It's not enough that the Trump administration wants to repeal the Affordable Care Act [nicknamed "Obamacare"]. But Donald Trump's administration wants to make drastic cuts to Medicare, Medicaid and Social Security Disability. If you're reading this and erroneously think "that will never be a concern of mine", then I'm happy your psychic powers have assured you that you will never get sick. "Okay, but I have enough money put aside for emergencies", well think again. I have personally seen many wealthy people go broke from a family member's chronic illness.
But I can't say it better than Rachel Doboga in her HuffPost Article. Just remember as you read: although Ms. Doboga is writing from the perspective of an ALS patient, you can apply this to Cancer, MS, Parkinsons Disease or Dementia; even Diabetes and Arthritis in a lot of cases. Even the best medical insurance can fall short when you or a loved one has to stop working and maintain himself through a chronic disease.