I was dwelling too much on those near and dear to my heart that I didn’t see around my birthday, that I wasn’t focusing enough on whom I DID get to see. I am so grateful to Jen and Judy, who came last Sunday to with a birthday cake and some gifts – a Starbucks card, Lindt truffles, and shower gel from Bath and Body Works. On the night of my birthday, I went to Appleby’s with Louise and had one of those alcoholic dessert drinks, which was more dessert than alcohol. And we shared this dessert thing, which was like a hot apple crisp with ice cream. I got cards from Debbie, Michelle Auletta and others. Even Gulshan brought me some Pom juice and Indian sweets. On my birthday, Ellita bought me dinner, and she bought me some body spray and lotion from Victoria’s Secret. Cheryl, her mom, bought me shampoo and conditioner from Victoria’s Secret. Norma sent a blast e-mail to everyone in the ALS community telling them it was my birthday, so I got literally about 100 e-mails.
Lynette’s first husband, and father to her eldest kids, died 2 weeks ago and she had to make an emergency trip to Guyana, so Gulshan has been working every single night since June 1. Although she was a trooper about it, I know it was difficult. Lynette came back to work last night and she had had her wallet stolen, so she was not a real happy camper.
And finally, there is one thing worse than not being invited to a Fourth of July. It’s being invited to a celebration I can’t get to. I am invited to Jeanellen’s family annual Fourth of July bash out in Eaton’s Neck and I can’t get there. I don’t think anyone will be able to drive with me, and the LIRR station is nowhere near there. I was invited to the Yankees game on ALS Night but it came in the middle of the aides’ shift change, so I couldn’t work it out. It is all so frustrating that, when I DO get invited somewhere, I have to depend on other people to get me there. It makes me so angry to lose my independence.
Until 2004, I was an independent and active woman -- a former airline sales exec and then a high school educator. Then my body kept betraying me. I was finally diagnosed with ALS/Lou Gehrig's Disease -- confined to a wheelchair and unable to speak. With life at a slower pace, I learned to live a more conscious and mindful life -- buying, eating and other choices. I listen instead of talking, and I observe instead of running and rushing.
Sunday, June 17, 2007
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Belated Happy Birthday Fern!
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