tag:blogger.com,1999:blog-3881579789503566925.post7179804117898762047..comments2023-10-09T05:51:49.873-04:00Comments on Forced to Sit Still and Shut Up -- A Journey Through ALS, Disability and Mindful Living: My Own Reality Show: How NYC Bureaucracy and Health Care Messes People UpFern Ellen Cohenhttp://www.blogger.com/profile/15615775005603320729noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3881579789503566925.post-25992766449436973042012-04-26T19:54:53.937-04:002012-04-26T19:54:53.937-04:00Websterto, I wish you luck!
I must take issue with...Websterto, I wish you luck!<br />I must take issue with your comment that it's worse to be poor than disabled. It's rather moot to compare the two because the way this country's health care system is structured, people with disabilities almost always end up poor no matter how much money they start out with. I was finally a tenured teacher when I was diagnosed, and had worked hard to reach a decent salary. It didn't matter anymore because I had to spend it all and then go on disability......so now I am poor AND disabled.......however, if you have your health, you can work. So it's never a choice between poor and disabled.Fern Ellen Cohenhttps://www.blogger.com/profile/15615775005603320729noreply@blogger.comtag:blogger.com,1999:blog-3881579789503566925.post-18697553914845668702012-04-26T02:34:43.611-04:002012-04-26T02:34:43.611-04:00My Lord, what bullshit they put you through. All s...My Lord, what bullshit they put you through. All so unnecessary. I deal with the recertification process regularly because I get food stamps and some help with my medical (in addition to Medicare), but no Medicaid, and no home health aide which I could use. Recently, without letting me know, they stopped paying my co-pays so I've been getting bills from a few Drs. Apparently I earn $10 too much now that the yearly COLA kicked in.<br /><br />I call DSHS and they send me a form to be sent back ASAP. That was last week. I haven't heard anything since. I think it was supposed to get me into a "spend down" program of some sort. Heck, if they don't tell me what programs they have that will benefit me, how can I apply for them? <br /><br />Wish me luck, and I will hope for the best for you as well. Being poor sucks worse than being disabled, I think.Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-3881579789503566925.post-71964445292199227412012-04-25T09:34:07.675-04:002012-04-25T09:34:07.675-04:00This is a disgrace; it's one of the reasons I ...This is a disgrace; it's one of the reasons I struggle to live independently. I'm going to message you on Facebook.Lisanoreply@blogger.com