tag:blogger.com,1999:blog-3881579789503566925.post17287353953306804..comments2023-10-09T05:51:49.873-04:00Comments on Forced to Sit Still and Shut Up -- A Journey Through ALS, Disability and Mindful Living: New Developments/Eating HealthyFern Ellen Cohenhttp://www.blogger.com/profile/15615775005603320729noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3881579789503566925.post-52464382497096466902011-03-21T13:12:19.381-04:002011-03-21T13:12:19.381-04:00Fern, your aides have the TV on most of the time, ...Fern, your aides have the TV on most of the time, whether you like it or not? I understand you need to accommodate and share the space, but I actually think that is not healthy for you. I think everyone should get a vote. You can also buy wireless headphones for the television for less than 50 dollars. This is why I fear having home health aides (I have progressive MS, but am holding out a bit longer).Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3881579789503566925.post-2284213800488399492011-02-23T22:29:14.777-05:002011-02-23T22:29:14.777-05:00Hi Fern,
Kudos to you for doing all you can to boo...Hi Fern,<br />Kudos to you for doing all you can to boost your immune system. Staying well is the best thing we can do. I don't do anything special, but I haven't had a cold or flu in many years. Oops, I hope I haven't spoiled things by mentioning that little fact. I'd better knock on wood or something - quick! Ah, there - all better now.<br /><br />I'm sorry to hear of the loss of your two friends. It is a difficult reality, esp. with ALS, and seems so unfair.<br /><br />Best of luck to you with your book. Maybe you could ask your aide to wear earphones while watching TV. If the sound is not too high, I'm sure she could still hear you if you called to her. Might be worth a try.Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-3881579789503566925.post-19183883959705566772011-02-23T14:25:13.502-05:002011-02-23T14:25:13.502-05:00So sad to hear of more ALS angels :0( who have lef...So sad to hear of more ALS angels :0( who have left, this always slaps me as it reminds me of how this will happen to me because my husband has ALS.<br /><br />We are getting ready to bite the bullet and book to get a peg tube done, your peg tube blog was very helpful and frank <<>> to you.Anonymoushttps://www.blogger.com/profile/18054690479663932630noreply@blogger.com